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News, Events, & Media

Return of Genetic Results for the All of Us Research Program

Mar 06, 2017 - Mar 07, 2017

pdf  (149 KB) Agenda

Day 1: View the Videocast

Day 2: View the Videocast

Type: Events

All of Us Research Program Engagement Partners Funding Opportunity Webinar

Feb 10, 2017

View the Videocast

pdf  (3.5 MB) Presentation Slides

Type: Events

NIH Renames Precision Medicine Cohort, Urges Patient Engagement

The NIH has renamed the Precision Medicine Cohort to the All of Us Research Program, bringing new opportunities for participant involvement in precision medicine.

Feb 07, 2017

Type: News

All of Us Research Program announces funding opportunity for community partners

Diverse community support vital for a cohort program reflective of the U.S. population.

Feb 01, 2017

Type: Announcements

All of Us Research Program Advisory Panel Meeting

Jan 11, 2017

View the Videocast

Type: Events

Faces of the Precision Medicine Initiative — Dr. Atul Butte (00:32)

Dr. Atul Butte of UC San Francisco explains how the Precision Medicine Initiative will reach more patients with complex diseases.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Dr. Matthew Might (00:29)

Dr. Matthew Might of the University of Utah shares why he's personally motivated to support the Precision Medicine Initiative as a scientist and a father of a child with a rare disease.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Dr. Della White (00:36)

Dr. Della White of the National Institute of Child Health and Human Development explains why participants need a voice in determining the direction of the Precision Medicine Initiative.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — NIH Director Dr. Francis Collins — Part 1 (00:31)

NIH Director Dr. Francis Collins describes how PMI will change the landscape of medicine and treatment.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Al Richmond (00:32)

Al Richmond of Community-Campus Partnerships for Health shares what the Precision Medicine Initiative means to him and his family.

Nov 16, 2016

Type: Videos , Patients and Advocates Perspectives

Faces of the Precision Medicine Initiative — Jamie Roberts (01:22)

Jamie Roberts of Clinical Trials Transformation Initiative shares her personal story, from the perspective of a patient and healthcare professional, about why she supports precision medicine.

Nov 16, 2016

Type: Videos , Patients and Advocates Perspectives

Faces of the Precision Medicine Initiative — Dr. Marie Lynn Miranda (00:31)

Dr. Marie Lynn Miranda explains how the Precision Medicine Initiative will improve health and prolong lives.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Dr. Donna Antoine-LaVigne (00:35)

Dr. Donna Antoine-LaVigne of Jackson State University and the Jackson Heart Study shares why participant engagement is vital to the success of the Precision Medicine Initiative.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Dr. Russ Altman (00:28)

Dr. Russ Altman of Standford University talks about how #PMINetwork brings together the best ideas from multiple medical disciplines to create an exciting future for medicine.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Sharon Terry (00:30)

Sharon Terry, President and CEO of Genetic Alliance, shares why she is personally invested in the Precision Medicine Initiative.

Nov 16, 2016

Type: Videos , Patients and Advocates Perspectives

Faces of the Precision Medicine Initiative — Eric Dishman (00:42)

Eric Dishman of Intel shares a how precision medicine saved his life.

Nov 16, 2016

Type: Videos , Patients and Advocates Perspectives

Faces of the Precision Medicine Initiative — Dr. Euan Ashley (00:25)

Dr. Euan Ashley of Stanford University shares why he is excited to take part in the Precision Medicine Initiative.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Jay Shendure (00:39)

Dr. Jay Shendure of the University of Washington explains why the Precision Medicine Initiative is an exciting time for geneticists.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Dr. Esteban G. Burchard (00:31)

Dr. Esteban G. Burchard of the University of California, San Francisco, explains why inclusion is vital to the success of the Precision Medicine Initiative.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — NIH Director Dr. Francis Collins — Part 2 (00:43)

Dr. Collins explains why community and participant engagement is critical to the Precision Medicine Initiative.

Nov 16, 2016

Type: Videos , Researcher Perspectives

Faces of the Precision Medicine Initiative — Aaron Seib (00:20)

Aaron Seib of the National Association for Trusted Exchange shares his hopes for PMI.

Nov 16, 2016

Type: Videos , Patients and Advocates Perspectives

Faces of the Precision Medicine Initiative — Bray Patrick-Lake (00:50)

Bray Patrick-Lake of Duke University talks about how the Precision Medicine Initiative will help unify medical records and treat individuals instead of averages.

Nov 16, 2016

Type: Videos , Patients and Advocates Perspectives

Presentation: U.S. Precision Medicine Initiative - Eric Dishman (49:02)

September 12, 2016 - National Advisory Council for Human Genome Research

Sep 16, 2016

Type: Videos , Director's Corner

Americans are keen to take part in a national precision medicine program

In an opinion piece in STAT, Precision Medicine Initiative Cohort Program Director Eric Dishman discusses survey results that indicate Americans are intersted in participating in the initiative. 

Sep 08, 2016

Type: News

Q&A: Kathy Hudson

In a Q&A with Nature, NIH Deputy Director for Science, Outreach and Policy Dr. Kathy Hudson discusses the challenges of the Precision Medicine Initiative Cohort Program.

Sep 08, 2016

Type: News

A Survey of U.S. Adults’ Opinions about Conduct of a Nationwide Precision Medicine Initiative Cohort Study of Genes and Environment

This PLoS ONE article provides results from a survey of a population-based sample of U.S. adults to measure attitudes toward the Precision Medicine Initiative Cohort Program. Seventy nine percent of respondents supported a national precision medicine study.

Aug 17, 2016

Type: News

Uncle Sam Wants You - Or at Least Your Genetic and Lifestyle Information

An article in the New York Times gives an overview of what participants can expect when enrolling in the Precision Medicine Initiative Cohort Program.

Jul 23, 2016

Type: News

Health Leaders Talk Data Analytics, Precision Medicine and the Opportunities, and Challenges, for Patient Care

Healthcare Informatics highlights how federal partners, research institutions and hospitals are approaching precision medicine.

Apr 27, 2016

Type: News

Meet Eric Dishman, the New Face of the Precision Medicine Initiative

In this interview with U.S. News & World Report, incoming PMI Cohort Program Director Eric Dishman discusses data, accessibility and the future of health research.

Apr 12, 2016

Type: News

Q&A: Tech expert and cancer survivor to lead U.S. 1-million-person health study

Eric Dishman speaks with ScienceInsider on the perspective he brings as a patient, social scientist and tech industry veteran.

Apr 12, 2016

Type: News

NIH Director’s Statement: Selection of Eric Dishman as Director of the Precision Medicine Initiative Cohort Program

Selection of Eric Dishman as Director of the Precision Medicine Initiative Cohort Program

Apr 11, 2016

Type: Announcements

NIH Director Sees Solving Data Puzzle as Key to U.S. Precision Medicine

In a Reuters interview, NIH Director Dr. Francis Collins discusses how the Precision Medicine Initiative will tackle piecing together data from existing studies and differing medical records.

Mar 06, 2016

Type: News

The Big Data Quest to Treat Every Disease

Dr. Collins speaks with The Atlantic’s James Hamblin on how genomics and other health information will inform the Precision Medicine Initiative.

Mar 02, 2016

Type: News

NIH Director’s Statement: Preparing to Launch the Precision Medicine Initiative Cohort Program

Preparing to Launch the Precision Medicine Initiative Cohort Program

Feb 25, 2016

Type: Announcements

Precision Medicine Initiative aims to revolutionize health care

In a story about the White House summit on PMI, Dr. Collins talks to CBS News about how PMI will gather information which will be informative not only on illness, but also on how to keep people in good health.

Feb 25, 2016

Type: News

NIH Taking First Steps to Huge Precision Medicine Project

This AP article outlines the first steps taken by NIH to build a one million person cohort study to expand our understanding of ways we can improve health and treat disease.

Feb 25, 2016

Type: News

New Guidelines Nudge Doctors to Give Patients Access to Medical Records

This New York Times article provides an overview of the new guidelines issued by the U.S. Department of Health & Human Services on individuals’ rights under HIPAA to access their health information.

Jan 16, 2016

Type: News

Q&A: Francis Collins on high hopes and a mad schedule for precision medicine

Politico features a Precision Medicine Initiative Q&A session with NIH Director Dr. Francis Collins and NIH Deputy Director for Science, Outreach and Policy Dr. Kathy Hudson.

Dec 27, 2015

Type: News

PMI Cohort Program Advisory Panel Meeting

Dec 17, 2015

pdf  (87.59 KB) Presentation

pdf  (185.64 KB) Agenda

Type: Events

Precision Medicine and FDA — Emerging Cloud Platform in Beta

In a recent post, Eye on FDA gives an overview of PrecisionFDA, a new precision medicine web space for researchers and organizations to conduct genome analysis and discuss results.

Dec 08, 2015

Type: News

NIH Director's Statement: An Update on the Precision Medicine Initiative Cohort Program

An Update on the Precision Medicine Initiative Cohort Program

Nov 17, 2015

Type: Announcements

Privacy principles set for Precision Medicine Initiative

Fierce Health IT provides an overview of PMI privacy and data security principles that were recently announced by the White House.

Nov 11, 2015

Type: News

Could precision medicine advance the goals of racial equity?

In a Newsworks article, Dr. Esteban Burchard talks about the importance of diversity and inclusion for the Precision Medicine Initiative.

Oct 15, 2015

Type: News

Building the foundation for genomics in precision medicine

Nature features a short series on precision medicine.

Oct 14, 2015

Type: News

Precision medicine ideas for VCs and angel investors

In Venture Beat, Dr. Florence Comite writes about how precision medicine will generate changes in teh physician to patient experience, with opportunities for more efficient ways to practice medicine.

Oct 11, 2015

Type: News

Precision Medicine: Much More Than Just Genetics

A PLOS Blog explains why the Precision Medicine Initiative cohort program is more than a genomic project.

Sep 24, 2015

Type: News

NIH Director’s Statement: Building the Precision Medicine Initiative National Research Cohort — The Time is Now

Building the Precision Medicine Initiative National Research Cohort — The Time is Now

Sep 16, 2015

Type: Announcements

Everything You Need to Know About Precision Medicine

An article in Popular Science gives a detailed overview of continued efforts to bring precision medicine into standard clinical practice.

Aug 27, 2015

Type: News

Patients’ Medical Records May Soon Have Genetic Results

A recent US News and World Report article looked at the eventual inclusion of genetic information in personal medical records and how the direction of the Precision Medicine Initiative will mean greater patient involvement in healthcare decisions.

Jul 23, 2015

Type: News

Precision Medicine Initiative Gears Up

An article from Health Data Management reviewed updates on the Precision Medicine Initiative from the White House. Privacy and trust principles were examined and the writer noted the desire to safeguard patient data while also sharing it as freely as possible is a significant challenge for the initiative.

Jul 09, 2015

Type: News

Precision Medicine Initiative Gears Up

A recent article in MobiHealth News explained how participants’ mobile technologies, such as smartphones and wearable health data trackers, will be key elements for collecting information for the Precision Medicine Initiative. The article also highlighted NIH’s PMI Feedback blog.

Jul 07, 2015

Type: News

Participant Engagement and Health Equity Workshop

Jul 01, 2015 - Jul 02, 2015

Venue: National Institutes of Health, Bethesda, Md.

Type: Events

From Bench to Bedside: How Precision Medicine is Changing the Future

NIH Director Dr. Francis Collins recently gave a presentation at the annual Aspen Ideas Festival. In his talk, Dr. Collins highlights how the Precision Medicine Initiative pushes for methods opposite of the one-size-fits-all standard of disease treatment currently in use.

Jun 26, 2015

Type: News

Michigan trials take cancer fight to cellular level

The Detroit News recently published an article about efforts spurred by the Precision Medicine Initiative taking place at local hospitals and research laboratories. The article highlights clinical trials that target cancer in a new way. Dr. Barbara Conley of the National Cancer Institute is interviewed for the piece.

Jun 23, 2015

Type: News

Conquering Cancer: Personalized Medicine is the Future

The Huffington Post looks at the Precision Medicine Initiative through the lens of treating cancer. This blog post details how precision medicine focuses on treating each patient based on their genetic makeup and specific mutations in their body.

Jun 19, 2015

Type: News

Driving Innovation in Health Systems through an Apps-Based Information Economy

A recent commentary in Cell Systems examined how modern-day software applications will help put the Precision Medicine Initiative into practice.

Jun 11, 2015

Type: News

Cancer trials are changing. That could mean faster access to better drugs

The Washington Post examines a new model of cancer research, which focuses on precision medicine. Instead of finding drugs to treat cancers in specific organs, new trials seek to group patients together based on similar genetic mutations, regardless of cancer location.

Jun 01, 2015

Type: News

A new way to study cancer and its treatments

This article in the Washington Post details how the NCI-MATCH research study is a prime example of a shift toward precision medicine. The trial is designed to be more efficient, faster and better able to match drugs with patients that are most likely to benefit from them.

Jun 01, 2015

Type: News

The history of medicine will seem blunt and random compared to what’s coming next

Dr. Eric Green, director of NIH’s National Human Genome Research Institute, gives five reasons we’re at a turning point with precision medicine and provides an overview of the Precision Medicine Initiative for this article in Business Insider.

May 20, 2015

Type: News

U.S. Introduces New DNA Standard for Ensuring Accuracy of Genetic Tests

The New York Times reports on recently released genetic testing standards by the National Institute of Standards and Technology. As the Precision Medicine Initiative gains momentum, standards in genetic testing are vital to ensure accurate diagnoses across varying laboratories and testing methods.

May 14, 2015

Type: News

How DNA sequencing is transforming the hunt for new drugs

An article by Reuters examines how pharmaceutical companies are using genome sequencing data to rapidly find new targets for drugs and therapies.

May 13, 2015

Type: News

Want Precision Medicine? Share Your Data

Kathy Giusti, member of the NIH Precision Medicine Initiative Working Group, writes a commentary in Forbes noting the need for a cultural shift to enable universal open data sharing in order to realize the full potential of precision medicine.

May 11, 2015

Type: News

The Precision Medicine Initiative: A New National Effort

In a viewpoint commentary in JAMA, Dr. Euan Ashley outlines the need for a national effort on precision medicine.

Apr 30, 2015

Type: News

Personalized medicine: Time for one-person trials

A commentary in Nature examines a new way of carrying out clinical trials through the lens of precision medicine.

Apr 29, 2015

Type: News

Precision Medicine: Working Toward Custom-Fitted Cures

U.S. News and World Report examines how the Precision Medicine Initiative could fundamentally change the way we practice medicine and treat disease.

Apr 28, 2015

Type: News

Michigan Child Trials Target Genetic Roots of Cancers

The Detroit News reports on how researchers at a Michigan children’s hospital are using precision medicine to develop treatments for pediatric cancers.

Apr 14, 2015

Type: News

It Takes Two to Tango: Combine Diagnostics and Drugs for Precision Medicine

In a Forbes commentary, Reenita Das writes about advancing precision medicine through companion diagnostics.

Apr 08, 2015

Type: News

Your Genes May be Key in Cancer Fight

The Detroit Free Press reports on a Michigan man that is cancer free thanks to a repurposed drug that stopped the progression of his disease.

Apr 08, 2015

Type: News

NIH forms team of experts to chart course for the President's Precision Medicine Initiative research network

Working Group to host public meetings, seek public input into the design of the Initiative.

Mar 30, 2015

Type: Announcements

NIH Plots Million-Person Megastudy

Science reports on the first Precision Medicine Initiative workshop, convened to set the course for NIH’s efforts in precision medicine, including building a long-term research study of over 1 million Americans.

Feb 20, 2015

Type: News

Public Workshop on Building a Precision Medicine Research Cohort

Feb 11, 2015 - Feb 12, 2015

Venue: National Institutes of Health, Porter Neuroscience Building, Bethesda, Md.

Type: Events

Interview with Dr. Francis Collins on What to Expect from the Recently Announced Precision Medicine Initiative – Audio

NIH Director Dr. Francis Collins previews early steps in the Precision Medicine Initiative in an audio interview with Stephen Morrissey, managing editor of the New England Journal of Medicine.

Apr 20, 2017

Type: News