The Child Enrollment Scientific Vision Working Group of the All of Us Advisory Panel seeks public input on the pediatric research that the All of Us Research Program may be uniquely positioned to enable through the enrollment of children. Specifically, the group is inviting comments on the following questions:
- What are the most significant short- (0–5 years), medium- (5–10 years), and long-term (more than 10 years) precision medicine research questions that could be addressed by the inclusion of pediatric populations in the All of Us Research Program?
- What are the key gaps in current pediatric study designs that might be appropriate for All of Us to address through the enrollment of children (for example, preconception studies, sibling studies, etc.)?
- What are the research resources that the inclusion of children into the All of Us Research Program could potentially generate (for example, innovative algorithms, methodologies, etc.)?
All responses must be submitted via web form by September 22, 2017, for the working group members to consider during the development of their report.
Inquiries may be sent to CESVWG@nih.gov.
Update: The comment period was extended from the original deadline of September 12 to September 22 to allow more time for gathering stakeholder feedback. This announcement has been revised to include the later date.