News, Events, & Media
All of Us and the American Medical Association teamed up to help doctors answer some of patients’ top questions about participating in the program.
February 26, 2018
This article from The Wall Street Journal highlights All of Us and other research programs working to transform research participants’ roles from subjects to partners. (Subscription required)
February 25, 2018
This update in the Report on Research Compliance introduces the All of Us Research Program, its plans, its goals, and its progress as the program moves rapidly toward national launch. Read the article pdf | 631.25 KB.
February 2, 2018
A recent article in HealthIT Analytics enumerates recent advances and progress for the All of Us Research Program as it moves toward national launch.
February 1, 2018
Health Affairs writes that the All of Us Research Program “has made remarkable progress in a short time, wrestling with challenging issues including privacy, security, trust, and return of results, which are central to creating a large-scale, people-centered health initiative.”
January 31, 2018
U.S. News & World Report and All of Us director Eric Dishman explain how precision medicine can be used to select the right treatments, reduce side effects, and improve overall care.
January 26, 2018
Recognizing the crucial role of physicians in clinical research success, the NIH is teaming up with the American Medical Association to offer a webinar to increase health care providers’ understanding and awareness of the All of Us Research Program.
January 24, 2018
This update in the Journal of the American Medical Association highlights the All of Us Research Program’s plan to recruit participants at public libraries.
January 23, 2018
NIH Director Dr. Francis Collins sat down with The Takeaway’s Todd Zwillich to explain the All of Us Research Program and its mission.
January 18, 2018
In this blog post from the Precision Medicine World Conference, All of Us Chief Engagement Officer Dara Richardson-Heron, M.D., talks about her role with the All of Us Research Program, the importance of inclusive science, and researchers’ responsibility to acknowledge their community’s past mistakes.
January 18, 2018
Popular Mechanics considers the discoveries and scientific progress that could be enabled by the All of Us Research Program’s research platform.
January 17, 2018
Health IT Analytics describes the All of Us Research Program’s call for use cases and research questions to consider during its upcoming Research Priorities Workshop and beyond.
January 16, 2018
In a lengthy interview with the Washington Post, NIH director Francis Collins shares his excitement about the scale and potential of the All of Us Research Program.
January 16, 2018
An article in Healthcare IT News summarizes the conclusions of the report published by the All of Us Research Program Genomics Working Group.
January 2, 2018
In this Q & A article Stephanie Devaney, Ph.D., deputy director of the All of Us Research Program, discusses how the new frontier of precision medicine, fueled by genomics, is at the heart of all our future health and healthcare.
June 1, 2017
As the biomedical research enterprise increasingly moves to a more participatory model of research, where research participants are treated more as partners than passive subjects, we can expect greater emphasis on returning individual-level results of research to participants.
May 30, 2017
A radical technology platform emerges for health and medicine.
May 22, 2017
The NIH has renamed the Precision Medicine Cohort to the All of Us Research Program, bringing new opportunities for participant involvement in precision medicine.
February 7, 2017
In a Q&A with Nature, NIH Deputy Director for Science, Outreach and Policy Dr. Kathy Hudson discusses the challenges of the Precision Medicine Initiative Cohort Program.
September 8, 2016
In an opinion piece in STAT, Precision Medicine Initiative Cohort Program Director Eric Dishman discusses survey results that indicate Americans are intersted in participating in the initiative.
September 8, 2016
A Survey of U.S. Adults’ Opinions about Conduct of a Nationwide Precision Medicine Initiative Cohort Study of Genes and Environment
This PLoS ONE article provides results from a survey of a population-based sample of U.S. adults to measure attitudes toward the Precision Medicine Initiative Cohort Program. Seventy nine percent of respondents supported a national precision medicine study.
August 17, 2016
An article in the New York Times gives an overview of what participants can expect when enrolling in the Precision Medicine Initiative Cohort Program.
July 23, 2016
Health Leaders Talk Data Analytics, Precision Medicine and the Opportunities, and Challenges, for Patient Care
Healthcare Informatics highlights how federal partners, research institutions and hospitals are approaching precision medicine.
April 27, 2016
Eric Dishman speaks with ScienceInsider on the perspective he brings as a patient, social scientist and tech industry veteran.
April 12, 2016
In this interview with U.S. News & World Report, incoming PMI Cohort Program Director Eric Dishman discusses data, accessibility and the future of health research.
April 12, 2016
In a Reuters interview, NIH Director Dr. Francis Collins discusses how the Precision Medicine Initiative will tackle piecing together data from existing studies and differing medical records.
March 6, 2016
Dr. Collins speaks with The Atlantic’s James Hamblin on how genomics and other health information will inform the Precision Medicine Initiative.
March 2, 2016
This AP article outlines the first steps taken by NIH to build a one million person cohort study to expand our understanding of ways we can improve health and treat disease.
February 25, 2016
In a story about the White House summit on PMI, Dr. Collins talks to CBS News about how PMI will gather information which will be informative not only on illness, but also on how to keep people in good health.
February 25, 2016
This New York Times article provides an overview of the new guidelines issued by the U.S. Department of Health & Human Services on individuals’ rights under HIPAA to access their health information.
January 16, 2016
Politico features a Precision Medicine Initiative Q&A session with NIH Director Dr. Francis Collins and NIH Deputy Director for Science, Outreach and Policy Dr. Kathy Hudson.
December 27, 2015
In a recent post, Eye on FDA gives an overview of PrecisionFDA, a new precision medicine web space for researchers and organizations to conduct genome analysis and discuss results.
December 8, 2015
Fierce Health IT provides an overview of PMI privacy and data security principles that were recently announced by the White House.
November 11, 2015
In a Newsworks article, Dr. Esteban Burchard talks about the importance of diversity and inclusion for the Precision Medicine Initiative.
October 15, 2015
Nature features a short series on precision medicine.
October 14, 2015
In Venture Beat, Dr. Florence Comite writes about how precision medicine will generate changes in the physician to patient experience, with opportunities for more efficient ways to practice medicine.
October 11, 2015
A PLOS Blog explains why the Precision Medicine Initiative cohort program is more than a genomic project.
September 24, 2015
An article in Popular Science gives a detailed overview of continued efforts to bring precision medicine into standard clinical practice.
August 27, 2015
A recent US News and World Report article looked at the eventual inclusion of genetic information in personal medical records and how the direction of the Precision Medicine Initiative will mean greater patient involvement in healthcare decisions.
July 23, 2015
A recent article in MobiHealth News explained how participants’ mobile technologies, such as smartphones and wearable health data trackers, will be key elements for collecting information for the Precision Medicine Initiative. The article also highlighted NIH’s PMI Feedback blog.
July 7, 2015
NIH Director Dr. Francis Collins recently gave a presentation at the annual Aspen Ideas Festival. In his talk, Dr. Collins highlights how the Precision Medicine Initiative pushes for methods opposite of the one-size-fits-all standard of disease treatment currently in use.
June 26, 2015
The Detroit News recently published an article about efforts spurred by the Precision Medicine Initiative taking place at local hospitals and research laboratories. The article highlights clinical trials that target cancer in a new way. Dr. Barbara Conley of the National Cancer Institute is interviewed for the piece.
June 23, 2015
The Huffington Post looks at the Precision Medicine Initiative through the lens of treating cancer. This blog post details how precision medicine focuses on treating each patient based on their genetic makeup and specific mutations in their body.
June 19, 2015
A recent commentary in Cell Systems examined how modern-day software applications will help put the Precision Medicine Initiative into practice.
June 11, 2015
This article in the Washington Post details how the NCI-MATCH research study is a prime example of a shift toward precision medicine. The trial is designed to be more efficient, faster and better able to match drugs with patients that are most likely to benefit from them.
June 1, 2015
The Washington Post examines a new model of cancer research, which focuses on precision medicine. Instead of finding drugs to treat cancers in specific organs, new trials seek to group patients together based on similar genetic mutations, regardless of cancer location.
June 1, 2015
Dr. Eric Green, director of NIH’s National Human Genome Research Institute, gives five reasons we’re at a turning point with precision medicine and provides an overview of the Precision Medicine Initiative for this article in Business Insider.
May 20, 2015
The New York Times reports on recently released genetic testing standards by the National Institute of Standards and Technology. As the Precision Medicine Initiative gains momentum, standards in genetic testing are vital to ensure accurate diagnoses across varying laboratories and testing methods.
May 14, 2015
An article by Reuters examines how pharmaceutical companies are using genome sequencing data to rapidly find new targets for drugs and therapies.
May 13, 2015
Kathy Giusti, member of the NIH Precision Medicine Initiative Working Group, writes a commentary in Forbes noting the need for a cultural shift to enable universal open data sharing in order to realize the full potential of precision medicine.
May 11, 2015
In a viewpoint commentary in JAMA, Dr. Euan Ashley outlines the need for a national effort on precision medicine.
April 30, 2015
A commentary in Nature examines a new way of carrying out clinical trials through the lens of precision medicine.
April 29, 2015
U.S. News and World Report examines how the Precision Medicine Initiative could fundamentally change the way we practice medicine and treat disease.
April 28, 2015
The Detroit News reports on how researchers at a Michigan children’s hospital are using precision medicine to develop treatments for pediatric cancers.
April 14, 2015
The Detroit Free Press reports on a Michigan man that is cancer free thanks to a repurposed drug that stopped the progression of his disease.
April 8, 2015
In a Forbes commentary, Reenita Das writes about advancing precision medicine through companion diagnostics.
April 8, 2015
Science reports on the first Precision Medicine Initiative workshop, convened to set the course for NIH’s efforts in precision medicine, including building a long-term research study of over 1 million Americans.
February 20, 2015
Interview with Dr. Francis Collins on What to Expect from the Recently Announced Precision Medicine Initiative – Audio
NIH Director Dr. Francis Collins previews early steps in the Precision Medicine Initiative in an audio interview with Stephen Morrissey, managing editor of the New England Journal of Medicine.