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University of Iowa joins 'All of Us' research initiative

In principle, the All of Us initiative will determine “how genetics or your biology or your lifestyle and your environment all come together to determine your health and disease,” said Colleen Campbell, assistant director of the Iowa Institute of Human Genetics.

May 13, 2018

Type: News

Vanderbilt Plays Major Role in Nationwide ‘All of Us Research Program’

The Herald Chronicle of Winchester, Tennessee, reports on Vanderbilt University Medical Center’s participation in the All of Us Research Program.

May 12, 2018

Type: News

‘All of Us’ Research Program Recruiting Participants

Dr. Mallika Marshall reports on New Englanders’ interest in precision medicine and the All of Us Research Program.

May 11, 2018

Type: News

Healthcare Data Security Key Part of NIH All of Us Program

All of Us Research Program director Eric Dishman emphasizes the program’s dedication to data privacy and security.

May 9, 2018

Type: News

Pay It Forward: Join with All of Us Research Program to Build a Healthier Future

The secretary of the Department of Health and Human Services and the director of the National Institutes of Health announce the national launch of the All of Us Research Program.

May 7, 2018

Type: News

How To Conquer The Critical Health Challenges Facing Black America

“Programs like All of Us are additional ways we can further research participation as well as inspire all people to actively advocate for equal access to effective treatments and care in order to truly inspire change,” writes Dr. Randall Cobb, executive director of the W. Montague Cobb/National Medical Association Health Institute.

May 6, 2018

Type: News

B’ham Given Opportunity to Participate in National Research Program

During a day of events kicking off the national launch of the All of Us Research Program, WBRC spoke with Bruce Korf, Chief Genomics Officer at the University of Alabama at Birmingham Medicine.

May 6, 2018

Type: News

Landmark Health Study

As the All of Us Research Program kicks off launch events and national enrollment, NBC Nightly News explains the promise of precision medicine and what people can expect if they decide to participate.

May 6, 2018

Type: News

National Institutes of Health Launches Research Program Based on Patient Data

“We’re trying to introduce the idea of biological research to more and more people in the U.S.,” said Joyce Ho, lead All of Us investigator at Northwestern Medicine. “We want the data to be diverse and representative of all who live in the country.”

May 6, 2018

Type: News

National Adventure: All of Us Research Program Launches Prioritizing Diversity, Security

Bio IT World highlights the All of Us Research Program’s commitments to data security and participant diversity.

May 6, 2018

Type: News

American Association on Health and Disability (AAHD) Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine

“AAHD is proud to be part of this initiative that will improve the health status of people with disabilities across the nation,” said Roberta S. Carlin, MS, JD, AAHD Executive Director.

May 4, 2018

Type: News

Nationwide Effort To Personalize Medicine Kicks Off

Wisconsin Public Radio highlights All of Us Research Program partners at the University of Wisconsin Medical School, the Medical College of Wisconsin, and Marshfield Clinic.

May 4, 2018

Type: News

Mayo Clinic Announces Biobank Will Store Samples from NIH All of Us Precision Medicine Initiative

The All of Us Research Program has partnered with Mayo Clinic to store blood and urine samples from one million or more participants across the U.S.

May 2, 2018

Type: News

The Health 202: The Government Is Opening the Doors to Its Big New Genetics Library

The Washington Post explores the goals of the All of Us Research Program and what makes it different from other large-scale health data projects.

May 2, 2018

Type: News

NIH Launches National Effort to Collect Health Info from 1M Americans

Dr. Francis Collins, director of the National Institutes of Health, taked with CBS Sunday Morning about what he calls “a national adventure that’s going to transform medical care.”

May 1, 2018

Type: News

NIH Opens Nationwide Enrollment for Huge Precision Medicine Initiative

STAT explains All of Us enrollment strategies and milestones past, present, and future.

May 1, 2018

Type: News

U.S. Seeking 1 Million for Massive Study of DNA, Health Habits

The Associated Press notes that learning about medicine in way that will benefit everyone means studying “…the healthy and not-so-healthy, young and old, rural and urban, blue-collar and white-collar—and people of all races and ethnicities.”

May 1, 2018

Type: News

The DNA Data We Have Is Too White. Scientists Want to Fix That

“By embracing—and actively seeking out—more minorities in research,” says Smithsonian Magazine, “the project hopes to give more accurate data about the overall population and fix a long-time discrepancy that has real health impacts.”

April 30, 2018

Type: News

For UAB’s Might, Precision Medicine Was Personal

Matt Might got into precision medicine to help his family. Today, he’s working with All of Us and the University of Alabama at Birmingham to bring these benefits to others.

April 30, 2018

Type: News

Answers to patients’ top 5 questions on All of Us Research Program

All of Us and the American Medical Association teamed up to help doctors answer some of patients’ top questions about participating in the program.

February 26, 2018

Type: News

Medical Researchers Look to Enlist Patients as Partners

This article from The Wall Street Journal highlights All of Us and other research programs working to transform research participants’ roles from subjects to partners. (Subscription required)

February 25, 2018

Type: News

National Launch of Landmark All of Us Study Set for Spring; Portal for Researchers to Follow

This update in the Report on Research Compliance introduces the All of Us Research Program, its plans, its goals, and its progress as the program moves rapidly toward national launch. Read the article pdf | 631.25 KB.

February 2, 2018

Type: News

NIH Preps National Launch of “All of Us” Precision Medicine Biobank

A recent article in HealthIT Analytics enumerates recent advances and progress for the All of Us Research Program as it moves toward national launch.

February 1, 2018

Type: News

Medical Research and Development Issues to Watch for in 2018

Health Affairs writes that the All of Us Research Program “has made remarkable progress in a short time, wrestling with challenging issues including privacy, security, trust, and return of results, which are central to creating a large-scale, people-centered health initiative.”

January 31, 2018

Type: News

What Does Personalized Medicine Really Mean?

U.S. News & World Report and All of Us director Eric Dishman explain how precision medicine can be used to select the right treatments, reduce side effects, and improve overall care.

January 26, 2018

Type: News

Wanted: 1 Million or More People to Shape Precision Medicine’s Future

Recognizing the crucial role of physicians in clinical research success, the NIH is teaming up with the American Medical Association to offer a webinar to increase health care providers’ understanding and awareness of the All of Us Research Program.

January 24, 2018

Type: News

Study Recruitment to Accelerate Precision Medicine

This update in the Journal of the American Medical Association highlights the All of Us Research Program’s plan to recruit participants at public libraries.

January 23, 2018

Type: News

Creating the World’s Largest Genetic Library

NIH Director Dr. Francis Collins sat down with The Takeaway’s Todd Zwillich to explain the All of Us Research Program and its mission.

January 18, 2018

Type: News

Q&A with Dr. Dara Richardson-Heron, Chief Engagement Officer, All of Us

In this blog post from the Precision Medicine World Conference, All of Us Chief Engagement Officer Dara Richardson-Heron, M.D., talks about her role with the All of Us Research Program, the importance of inclusive science, and researchers’ responsibility to acknowledge their community’s past mistakes.

January 18, 2018

Type: News

Will You Donate Your DNA to the Government's Genetic Database?

Popular Mechanics considers the discoveries and scientific progress that could be enabled by the All of Us Research Program’s research platform.

January 17, 2018

Type: News

NIH Wants 1 Million Americans to Contribute to New Pool of Gene Data

In a lengthy interview with the Washington Post, NIH director Francis Collins shares his excitement about the scale and potential of the All of Us Research Program.

January 16, 2018

Type: News

NIH Calls for “All of Us” Population Health Research Proposals

Health IT Analytics describes the All of Us Research Program’s call for use cases and research questions to consider during its upcoming Research Priorities Workshop and beyond.

January 16, 2018

Type: News

NIH Working Group: All of Us Program Should Begin as Pilot Study

An article in Healthcare IT News summarizes the conclusions of the report published by the All of Us Research Program Genomics Working Group.

January 2, 2018

Type: News

UConn Health Conference – Genomics: at the Heart of ‘All of Us’

In this Q & A article Stephanie Devaney, Ph.D., deputy director of the All of Us Research Program, discusses how the new frontier of precision medicine, fueled by genomics, is at the heart of all our future health and healthcare.

June 1, 2017

Type: News

A Fresh Look at the Rules for Returning Research Results

As the biomedical research enterprise increasingly moves to a more participatory model of research, where research participants are treated more as partners than passive subjects, we can expect greater emphasis on returning individual-level results of research to participants.

May 30, 2017

Type: News

Health Care, Precisely One Person at a Time

A radical technology platform emerges for health and medicine.

May 22, 2017

Type: News

NIH Renames Precision Medicine Cohort, Urges Patient Engagement

The NIH has renamed the Precision Medicine Cohort to the All of Us Research Program, bringing new opportunities for participant involvement in precision medicine.

February 7, 2017

Type: News

Americans are Keen to Take Part in a National Precision Medicine Program

In an opinion piece in STAT, Precision Medicine Initiative Cohort Program Director Eric Dishman discusses survey results that indicate Americans are intersted in participating in the initiative. 

September 8, 2016

Type: News

Q&A: Kathy Hudson

In a Q&A with Nature, NIH Deputy Director for Science, Outreach and Policy Dr. Kathy Hudson discusses the challenges of the Precision Medicine Initiative Cohort Program.

September 8, 2016

Type: News

A Survey of U.S. Adults’ Opinions about Conduct of a Nationwide Precision Medicine Initiative Cohort Study of Genes and Environment

This PLoS ONE article provides results from a survey of a population-based sample of U.S. adults to measure attitudes toward the Precision Medicine Initiative Cohort Program. Seventy nine percent of respondents supported a national precision medicine study.

August 17, 2016

Type: News

Uncle Sam Wants You - Or at Least Your Genetic and Lifestyle Information

An article in the New York Times gives an overview of what participants can expect when enrolling in the Precision Medicine Initiative Cohort Program.

July 23, 2016

Type: News

Health Leaders Talk Data Analytics, Precision Medicine and the Opportunities, and Challenges, for Patient Care

Healthcare Informatics highlights how federal partners, research institutions and hospitals are approaching precision medicine.

April 27, 2016

Type: News

Q&A: Tech Expert and Cancer Survivor to Lead U.S. 1-Million-Person Health Study

Eric Dishman speaks with ScienceInsider on the perspective he brings as a patient, social scientist and tech industry veteran.

April 12, 2016

Type: News

Meet Eric Dishman, the New Face of the Precision Medicine Initiative

In this interview with U.S. News & World Report, incoming PMI Cohort Program Director Eric Dishman discusses data, accessibility and the future of health research.

April 12, 2016

Type: News

NIH Director Sees Solving Data Puzzle as Key to U.S. Precision Medicine

In a Reuters interview, NIH Director Dr. Francis Collins discusses how the Precision Medicine Initiative will tackle piecing together data from existing studies and differing medical records.

March 6, 2016

Type: News

The Big Data Quest to Treat Every Disease

Dr. Collins speaks with The Atlantic’s James Hamblin on how genomics and other health information will inform the Precision Medicine Initiative.

March 2, 2016

Type: News

NIH Taking First Steps to Huge Precision Medicine Project

This AP article outlines the first steps taken by NIH to build a one million person cohort study to expand our understanding of ways we can improve health and treat disease.

February 25, 2016

Type: News

Precision Medicine Initiative Aims to Revolutionize Health Care

In a story about the White House summit on PMI, Dr. Collins talks to CBS News about how PMI will gather information which will be informative not only on illness, but also on how to keep people in good health.

February 25, 2016

Type: News

New Guidelines Nudge Doctors to Give Patients Access to Medical Records

This New York Times article provides an overview of the new guidelines issued by the U.S. Department of Health & Human Services on individuals’ rights under HIPAA to access their health information.

January 16, 2016

Type: News

Q&A: Francis Collins on High Hopes and a Mad Schedule for Precision Medicine

Politico features a Precision Medicine Initiative Q&A session with NIH Director Dr. Francis Collins and NIH Deputy Director for Science, Outreach and Policy Dr. Kathy Hudson.

December 27, 2015

Type: News

Precision Medicine and FDA — Emerging Cloud Platform in Beta

In a recent post, Eye on FDA gives an overview of PrecisionFDA, a new precision medicine web space for researchers and organizations to conduct genome analysis and discuss results.

December 8, 2015

Type: News

Privacy Principles Set for Precision Medicine Initiative

Fierce Health IT provides an overview of PMI privacy and data security principles that were recently announced by the White House.

November 11, 2015

Type: News

Could Precision Medicine Advance the Goals of Racial Equality?

In a Newsworks article, Dr. Esteban Burchard talks about the importance of diversity and inclusion for the Precision Medicine Initiative.

October 15, 2015

Type: News

Building the Foundation for Genomics in Precision Medicine

Nature features a short series on precision medicine.

October 14, 2015

Type: News

Precision Medicine Ideas for VCs and Angel Investors

In Venture Beat, Dr. Florence Comite writes about how precision medicine will generate changes in the physician to patient experience, with opportunities for more efficient ways to practice medicine.

October 11, 2015

Type: News

Precision Medicine: Much More Than Just Genetics

PLOS Blog explains why the Precision Medicine Initiative cohort program is more than a genomic project.

September 24, 2015

Type: News

Everything You Need to Know About Precision Medicine

An article in Popular Science gives a detailed overview of continued efforts to bring precision medicine into standard clinical practice.

August 27, 2015

Type: News

Patients’ Medical Records May Soon Have Genetic Results

A recent US News and World Report article looked at the eventual inclusion of genetic information in personal medical records and how the direction of the Precision Medicine Initiative will mean greater patient involvement in healthcare decisions.

July 23, 2015

Type: News

NIH seeks feedback on how to collect clinical data via smartphones, wearables

A recent article in MobiHealth News explained how participants’ mobile technologies, such as smartphones and wearable health data trackers, will be key elements for collecting information for the Precision Medicine Initiative. The article also highlighted NIH’s PMI Feedback blog.

July 7, 2015

Type: News

From Bench to Bedside: How Precision Medicine is Changing the Future

NIH Director Dr. Francis Collins recently gave a presentation at the annual Aspen Ideas Festival. In his talk, Dr. Collins highlights how the Precision Medicine Initiative pushes for methods opposite of the one-size-fits-all standard of disease treatment currently in use.

June 26, 2015

Type: News

Michigan Trials Take Cancer Fight to Cellular Level

The Detroit News recently published an article about efforts spurred by the Precision Medicine Initiative taking place at local hospitals and research laboratories. The article highlights clinical trials that target cancer in a new way. Dr. Barbara Conley of the National Cancer Institute is interviewed for the piece.

June 23, 2015

Type: News

Conquering Cancer: Personalized Medicine is the Future

The Huffington Post looks at the Precision Medicine Initiative through the lens of treating cancer. This blog post details how precision medicine focuses on treating each patient based on their genetic makeup and specific mutations in their body.

June 19, 2015

Type: News

Driving Innovation in Health Systems through an Apps-Based Information Economy

A recent commentary in Cell Systems examined how modern-day software applications will help put the Precision Medicine Initiative into practice.

June 11, 2015

Type: News

Cancer Trials are Changing. That Could Mean Faster Access to Better Drugs

The Washington Post examines a new model of cancer research, which focuses on precision medicine. Instead of finding drugs to treat cancers in specific organs, new trials seek to group patients together based on similar genetic mutations, regardless of cancer location.

June 1, 2015

Type: News

A New Way to Study Cancer and its Treatments

This article in the Washington Post details how the NCI-MATCH research study is a prime example of a shift toward precision medicine. The trial is designed to be more efficient, faster and better able to match drugs with patients that are most likely to benefit from them.

June 1, 2015

Type: News

The History of Medicine Will Seem Blunt and Random Compared to What’s Coming Next

Dr. Eric Green, director of NIH’s National Human Genome Research Institute, gives five reasons we’re at a turning point with precision medicine and provides an overview of the Precision Medicine Initiative for this article in Business Insider.

May 20, 2015

Type: News

U.S. Introduces New DNA Standard for Ensuring Accuracy of Genetic Tests

The New York Times reports on recently released genetic testing standards by the National Institute of Standards and Technology. As the Precision Medicine Initiative gains momentum, standards in genetic testing are vital to ensure accurate diagnoses across varying laboratories and testing methods.

May 14, 2015

Type: News

How DNA Sequencing is Transforming the Hunt for New Drugs

An article by Reuters examines how pharmaceutical companies are using genome sequencing data to rapidly find new targets for drugs and therapies.

May 13, 2015

Type: News

Want Precision Medicine? Share Your Data

Kathy Giusti, member of the NIH Precision Medicine Initiative Working Group, writes a commentary in Forbes noting the need for a cultural shift to enable universal open data sharing in order to realize the full potential of precision medicine.

May 11, 2015

Type: News

The Precision Medicine Initiative: A New National Effort

In a viewpoint commentary in JAMA, Dr. Euan Ashley outlines the need for a national effort on precision medicine.

April 30, 2015

Type: News

Personalized Medicine: Time for One-Person Trials

A commentary in Nature examines a new way of carrying out clinical trials through the lens of precision medicine.

April 29, 2015

Type: News

Precision Medicine: Working Toward Custom-Fitted Cures

U.S. News and World Report examines how the Precision Medicine Initiative could fundamentally change the way we practice medicine and treat disease.

April 28, 2015

Type: News

Michigan Child Trials Target Genetic Roots of Cancers

The Detroit News reports on how researchers at a Michigan children’s hospital are using precision medicine to develop treatments for pediatric cancers.

April 14, 2015

Type: News

It Takes Two to Tango: Combine Diagnostics and Drugs for Precision Medicine

In a Forbes commentary, Reenita Das writes about advancing precision medicine through companion diagnostics.

April 8, 2015

Type: News

Your Genes May be Key in Cancer Fight

The Detroit Free Press reports on a Michigan man that is cancer free thanks to a repurposed drug that stopped the progression of his disease.

April 8, 2015

Type: News

NIH Plots Million-Person Megastudy

Science reports on the first Precision Medicine Initiative workshop, convened to set the course for NIH’s efforts in precision medicine, including building a long-term research study of over 1 million Americans.

February 20, 2015

Type: News

Interview with Dr. Francis Collins on What to Expect from the Recently Announced Precision Medicine Initiative – Audio

NIH Director Dr. Francis Collins previews early steps in the Precision Medicine Initiative in an audio interview with Stephen Morrissey, managing editor of the New England Journal of Medicine.

Type: News