In the News

Inside Precision Medicine Editor-In-Chief Damian Doherty interviews All of Us Research Program Chief Executive Officer Dr. Josh Denny about the program’s progress and goals. The interview covers updates since the program’s launch in 2018 and outlines strategies to reach the ambitious goal of engaging more than one million participants who reflect the diversity of the country. The program aims to build an indispensable resource for researchers to help drive health discoveries that benefit us all.

USA Today’s Nada Hassanein highlighted the All of Us Research Program’s new participant survey on social determinants of health in an article emphasizing the need for diverse data on social and environmental factors that impact health. The article notes that the data will help fill research gaps and guide understanding of what leads to poor health outcomes.

MedPage Today interviews All of Us Research Program Chief Executive Officer Dr. Josh Denny about the program’s initiative to build one of the most diverse databases in history aimed at accelerating individualized care for everyone.

Patient Engagement HIT highlights the All of Us Research Program’s emphasis on building trust with community health partnerships, boosting participant engagement and diversity. The piece offers insights from Justin Hentges, Chief Financial and Management Officer and Acting Chief Engagement Officer for the All of Us Research Program.

In an article in Forbes, Praduman Jain of Vibrent Health—an All of Us partner organization—discusses the lack of diversity in research, citing a recent commentary in Cell by All of Us and NIH leadership, and details how digital technology can reduce health disparities and boost scientific discovery.

The Arizona Daily Star highlights the All of Us Research Program in the feature ‘The Heart of the Matter’ sharing comments from NIH Director Dr. Francis S. Collins, comparing the ambitious precision medicine effort to the renowned Framingham Heart Study.

Xavier Bofill De Ros, a postdoctoral fellow at the National Cancer Institute, explains the benefits and potential of the Human Genome Project, including the ambitious All of Us Research Program designed to collect one million human genomes and “unlock genetic secrets.”

Dr. Cora E. Lewis, a professor and chair of the Department of Epidemiology in the UAB School of Public Health, talked to the Birmingham Times about the pause of in-person enrollment for the All of Us Research Program when the pandemic started in March 2020 and explained how in-person recruitment resumed at UAB in January 2021 with safety precautions in place.

The All of Us Research Program is working to respectfully engage American Indian and Alaska Native (AI/AN) people and support their inclusion in precision medicine research. NIH engaged in a two-year Tribal Consultation process to gather input from tribal leaders; as a result, All of Us leaders reaffirmed a set of commitments to Tribal Nations, including rules to never recruit on tribal lands or disclose participants’ tribal affiliations without a tribe’s agreement.

All of Us at the Medical College of Wisconsin (MCW), in collaboration with partners throughout the country, is laying the groundwork for research that may help eliminate health disparities, particularly in communities of color. Historically, these communities have been underrepresented in biomedical research and experience the greatest disparities in health care access and health outcomes. Karen Dotson and her All of Us team at MCW want to lead the region in program enrollments from communities of color.

Eric Dishman, Chief Innovation Officer of the All of Us Research Program, spoke to the BioTeam about the diversity of the All of Us cohort, the diversity of data, and opening the All of Us platform to all researchers.

The research community has responded to the recognized lack of population diversity in clinical trials. A cornerstone of the All of Us Research Program is the enrollment of racial and ethnic minorities to ensure that diversity can inform precision medicine research.