SUMMARY: Develop applications and websites for volunteers to enroll in the program, provide data, and receive updates. Support ongoing testing and upgrades to improve the user experience; implement innovative participant tools; and ensure the security of all participant-facing systems.
SUMMARY: Engage patients in the All of Us Research Program, help build the research protocols and plans, enroll interested individuals, and collect essential health data and biological specimens.
SUMMARY: Develop, pilot, and refine community health center approaches for bringing underserved individuals, families, and communities into All of Us, especially those historically underrepresented in biomedical research.
AWARD DATE: July 6, 2016
Selected sites:
Cherokee Health Systems, Knoxville, Tennessee
Community Health Center, Inc., Middletown, Connecticut
Eau Claire Cooperative Health Center, Columbia, South Carolina
HRHCare, Peekskill, New York
Jackson-Hinds Comprehensive Health Center, Jackson, Mississippi
San Ysidro Health Center, San Ysidro, California
Collaborators:
Health Resources and Services Administration (HRSA)
MITRE Corporation
SUMMARY: Enroll individuals in the All of Us Research Program who do not have access to participating health care provider organizations, manage overall operations for direct volunteer enrollment across the country, and design and implement strategies to keep diverse populations of participants engaged over the long term
SUMMARY: Acquire, organize, and provide secure access to datasets and provide research support for the scientific data and analysis tools for the All of Us.
SUMMARY: Establish the All of Us Biobank to support the collection, storage, and distribution for research use of biospecimens. The biobank will also conduct laboratory analyses of the biospecimens including chemical and genetic tests and will provide separate facilities to store 20% to 25% of the collection in order to protect the national resource from localized natural disasters.
SUMMARY: Facilitate the implementation of strategies to engage public participants for the All of Us, and assist with the coordination of NIH awardees and partners across all NIH PMI activities.
SUMMARY: Pilot to develop an All of Us informational website/participant interface in which participants help test innovative methods and technologies for enabling robust participant engagement and user-friendly data collection.
SUMMARY: Pilot the use of open, standardized applications to give individuals the ability to contribute their data to research, including for the PMI Cohort when it is launched.
