PMI Working Group of the Advisory Committee to the Director

In March 2015, NIH announced the formation of the Precision Medicine Initiative Working Group of the Advisory Committee to the (NIH) Director. On September 17, 2015, the PMI Working Group delivered to the ACD a detailed report that provides a framework for building a national research cohort of 1 million or more Americans. Having fulfilled its charge, the PMI Working Group is no longer active. Read the Report PDF | 1 MB

Learn more about the charge of the working group on the ACD PMI Working Group web page. The Working Group was charged with developing a framework for creating and managing a large research cohort to understand the variables that contribute to health and disease. Data and specimens should be accessible to researchers to conduct studies to contribute to the body of knowledge to develop treatments tailored to individuals. 

Members of the PMI Working Group of the Advisory Committee to the Director

Portrait of Kathy Hudson

Kathy Hudson, Ph.D.

Co-Chair, ACD PMI WG, Deputy Director for Science, Outreach and Policy at the National Institutes of Health (NIH)

Portrait of Richard Lifton

Richard Lifton, M.D., Ph.D.

Co-Chair, ACD PMI WG, Chair, Department of Genetics, Sterling Professor of Genetics and Medicine, Founder and Executive Director, Yale Center for Genomic Analysis, Investigator, Howard Hughes Medical Institute, Yale University School of Medicine

Portrait of Bray Patrick-Lake

Bray Patrick-Lake, M.F.S.

Director of Strategic Partnerships at Evidation Health

Portrait of Gwynne Jenkins

Gwynne Jenkins

Former Chief of Staff

Portrait of Esteban Gonzalez Burchard

Esteban Gonzalez Burchard, M.D., M.P.H.

Harry Wm. and Diana V. Hind Distinguished Professor in Pharmaceutical Sciences Professor and Vice Chair, Departments of Bioengineering & Therapeutic Sciences and Medicine Director, Center for Genes, Environments & Health

Portrait of Tony Coles

Tony Coles, M.D., M.P.H.

Chairman and CEO, Yumanity Therapeutics

Portrait of Rory Collins

Rory Collins, F.Med.Sci.

Professor of Medicine, Epidemiology, Nuffield Department of Population Health, University of Oxford, U.K.

Portrait of Andrew J. Conrad

Andrew J. Conrad, Ph.D.

Head of Life Sciences Team, Google X, Mountain View, California

Portrait of Sue Desmond-Hellmann

Sue Desmond-Hellmann, M.D., M.P.H.

CEO, Gates Foundation, Seattle

Portrait of Eric Dishman

Eric Dishman

Chief Innovation Officer

Portrait of Kathy Guisti

Kathy Giusti, M.B.A.

Founder and Executive Chairman, Multiple Myeloma Research Foundation, Norwalk, Connecticut

Portrait of Sekar Kathiresan

Sekar Kathiresan, M.D.

Director, Preventive Cardiology, Massachusetts General Hospital, Boston; Institute Member, Broad Institute, Cambridge; Associate Professor of Medicine, Harvard Medical School, Boston

Portrait of Sachin Kheterpal

Sachin Kheterpal, M.D., M.B.A.

Associate Professor, Department of Anesthesiology, University of Michigan Medical School

Portrait of Shiriki Kumanyika

Shiriki K. Kumanyika, Ph.D., M.P.H.

Emeritus Professor of Epidemiology, University of Pennsylvania Perelman School of Medicine

Portrait of Spero Manson

Spero Manson, Ph.D.

Distinguished Professor and Director, Centers for American Indian and Alaska Native Health, Colorado School of Public Health, University of Colorado, Denver

Portrait of P. Pearl O'Rourke

P. Pearl O’Rourke, M.D.

Director, Human Research Affairs, Partners Health Care System, Inc., Boston

Portrait of Richard Platt

Richard Platt, M.D., M.Sc.

Professor and Chair of the Harvard Medical School Department of Population Medicine, Harvard Pilgrim Health Care Institute, Boston

Portrait of Jay Shendure

Jay Shendure, M.D., Ph.D.

Associate Professor, Genome Sciences, University of Washington, Seattle

Portrait of Sue Siegel

Sue Siegel, CEO, GE

CEO, Ventures & Healthymagination, Menlo Park, CA

Portrait of Karen B. DeSalvo

Karen B. DeSalvo, M.D., M.P.H., M.Sc.

Ex Officio Member, Acting Assistant Secretary for Health, National Coordinator for Health Information Technology, Office of the National Coordinator, U.S. Department of Health and Human Services

Portrait of J. Michael Gaziano

J. Michael Gaziano, M.D., M.P.H.

Ex Officio Member, Principal Investigator, Million Veteran Program, Department of Veterans Affairs

Portrait of Jo Handelsman

Jo Handelsman, Ph.D.

Ex Officio Member, Associate Director for Science, White House Office of Science and Technology Policy

Portrait of Timothy O'Leary

Timothy J. O’Leary, M.D.

Ex Officio Member, Chief Research and Development Officer, U.S. Department of Veterans Affairs

Portrait of Terry Rauch

Terry M. Rauch, Ph.D.

Ex Officio Member, Director of the Defense Medical Research and Development Program, U.S. Department of Defense