All of Us Tribal Engagement

All of Us welcomes people from all communities, especially those that have been left out of research in the past, including American Indian and Alaska Native (AI/AN) people. When more communities take part in studies, researchers can close information gaps and find ways to improve health for all.

Recognizing that tribes in the United States are sovereign nations, we are having ongoing conversations with tribal leaders and members across the country to better understand the views and concerns of tribal communities and find ways to build a strong program together.


Tribal Consultation
Key Milestones
Our Partners
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Tribal Consultation

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Some tribes have concerns about taking part in research studies. All of Us met with tribal leaders at a set of formal meetings called "consultations" to learn more about their views. We prepared a final report that summarizes the feedback we received throughout this process, along with our plans developed in response—including efforts to collaborate with Tribal Nations, protect data, engage AI/AN researchers, and more.

  • We will respect tribal sovereignty by engaging Tribal Nations to ensure that research using the program’s biospecimens and data from tribal members is done in a way that is respectful of applicable tribal customs, culture, and laws.
  • We will work to include as much diversity of AI/AN populations as possible in the program by partnering with tribes and with organizations with urban Indian expertise that want to collaborate.
  • We will not recruit on tribal lands without first obtaining approval from the tribe.
  • We will not share information about participants’ tribal affiliation without first getting approval from the tribe.
  • We will support the development of educational materials for researchers and participants, work with AI/AN researchers in partnership with AI/AN communities, and promote community-based participatory research.
  • We will work to ensure representation of AI/AN populations throughout all aspects of program governance.
  • We will give all self-identified AI/AN participants a chance to learn more about our tribal consultation and speak with their tribal leaders so they can decide whether they want to stay involved before we share any AI/AN data or samples for research.

 

Read the report

If you're a participant or considering signing up, please also visit our webpage at JoinAllofUs.org with information for American Indians and Alaska Natives.

Key Milestones

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For More Information

All of Us Research Program Protocol

Frequently Asked Questions About All of Us

Questions or feedback? We’re listening. Contact us anytime at AoUTribal@nih.gov.

California Rural Indian Health Board Listening Session

  • Location: Washington, DC
  • Date & Time: May 2, 2019, 1:00-2:00 pm ET

National Congress of American Indians All of Us Research Program Overview Webinar

United South & Eastern Tribes Listening Session

  • Location: Nashville, TN
  • Date & Time: June 18, 2019, 10:00 am CT
  • Event Details: Agenda

HHS Regional Consultation (Region 9)

  • Location: Sacramento, CA
  • Date & Time: June 20, 2019, 1:30-2:30 pm PT
  • Event Details: Agenda

National Congress of American Indians Consultation

HHS Regional Consultation (Region 10)

  • Location: Spokane, WA
  • Date & Time: July 11, 2019, 1:30-2:30 pm PT
  • Event Details: Agenda

Alaska Native Health Board Mega Meeting Listening Session

  • Location: Anchorage, AK
  • Date & Time: August 7, 2019
  • Event Details: Agenda

HHS Regional Consultation (Regions 6, 7 and 8)

  • Location: Denver, CO
  • Date & Time: August 21, 2019, 2:30-5:00 pm MT
  • Event Details: Agenda

NIH Tribal Advisory Committee (TAC) In-Person Meeting

  • Location: Fairbanks, AK
  • Date & Time: August 22, 2019, 1:00-2:00 pm AT

HHS Regional Consultation (Region 3)

  • Location: Providence Forge, VA
  • Date & Time: September 18, 2019
  • Event Details: Agenda

Oklahoma Listening Session

  • Location: CHK Central Boathouse, 732 Riversport Drive, Oklahoma City, OK 73129
  • Date & Time: October 22, 2019, 1:00-4:00 pm CT
  • Event Details: Agenda