Ethical, Legal, and Social Implications (ELSI) Workshop Agenda

June 24-25, 2019
Rockville, MD

Day 1–Monday, June 24, 2019
 

Topic: Welcome (VIDEOCAST)
Time: 9:00–9:10 a.m. 
Presenter/Faciltator: Katherine Blizinsky, PhD, All of Us Research Program 


Topic: Workshop Priorities (VIDEOCAST)
Time: 9:10–9:30 a.m.  
Presenter/Faciltator: Subhashini Chandrasekharan, PhD, All of Us Research Program 


Topic: Keynote Presentation (VIDEOCAST) 
Time: 9:30–9:45 a.m.
Presenter/Facilitator: Stephanie Devaney, PhD, All of Us Research Program 


Topic: Scientific Priorities for the All of Us Research Program (VIDEOCAST) 
Time: 9:45–10:30 a.m. 
Presenter/Facilitator: Kelly Gebo, MD, MPH, All of Us Research Program 


Topic: Engagement and Retention Priorities for the All of Us Research Program (VIDEOCAST) 
Time: 9:45–10:30 a.m. 
Presenter/Facilitator: Consuelo H. Wilkins, MD, MSCI, Vanderbilt University 


Break 
Time: 10:30–10:40 a.m. 


TopicAll of Us Research Resources (VIDEOCAST) 
Time: 10:40–11:15 a.m. 
Presenter/Facilitator: Weiyi Xia, PhD, Vanderbilt University, Dikshya Bastakoty, PhD, Vanderbilt University 


Topic: All of Us Policy Implementation (VIDEOCAST) 
Time: 11:15–11:45 a.m. 
Presenter/Facilitator: John Wilbanks, BA, Sage Bionetworks, Ericka Thomas, MS, All of Us Research Program 


Lunch
Time: 
11:45 a.m.–12:45 p.m.  


Topic: Demo of All of Us Research Hub and Discussion (VIDEOCAST) 
Time: 12:45–2:15 p.m. 
Presenter/Facilitator: Kelsey Mayo, PhD, Vanderbilt University 


Topic: Breakout Session 1: Ideation (CLOSED SESSION) 
Time: 2:15–5:00 p.m. 
Session Goal: Workshop participants will share, discuss, and record ideas for how they could use the All of Us resource for ELSI research 

  1. Legal/Regulatory Policy 
  2. Genomics 
  3. Social Determinants of Health 

Adjourn 
Time: 5:00 p.m. 


Day 2–Tuesday, June 25, 2019

 

Topic: Welcome (VIDEO CAST)
Time: 8:30–8:35 a.m. 
Presenter/Faciltator: Katherine Blizinsky, PhD, All of Us Research Program 


Topic: Recap of Day One and Set the Stage for Day Two (VIDEOCAST) 
Time: 8:35–9:00 a.m.  
Presenter/Faciltator: Megan Doerr, MS, Sage Bionetworks 


Topic: Breakout Session 2: Just Do It (Test Case Studies) (CLOSED SESSION)  
Time: 9:00–12:00 p.m.*
Session Goal: Develop case studies to share with all workshop participants 

  1. Legal/Regulatory Policy 
  2. Genomics 
  3. Social Determinants of Health 

Lunch 
Time: 12:00–1:00 p.m. 


Topic: Plenary Session: Presentations by Breakout Groups (VIDEOCAST) 
Time: 1:00–2:00 p.m. 

  1. Legal/Regulatory Policy 
  2. Genomics 
  3. Social Determinants of Health 

Topic: Breakout Session 3: Development for Technical Needs (CLOSED SESSION)  
Time: 2:00-3:35 p.m.
Session Goal: Brainstorm and rank ideas for future development of the technical platform/interface for ELSI researchers  

  1. Legal/Regulatory Policy 
  2. Genomics 
  3. Social Determinants of Health 

Topic: Closing Remarks (VIDEOCAST) 
Time: 3:35–4:00 p.m. 
Presenter/Facilitator: Katherine Blizinsky, PhD, All of Us Research Program 


Adjourn Workshop
Time: 4:00 p.m

 

View All of Us ELSI Workshop Announcement