June 24-25, 2019
Rockville, MD
Day 1–Monday, June 24, 2019
Topic: Welcome (VIDEOCAST)
Time: 9:00–9:10 a.m.
Presenter/Facilitator: Katherine Blizinsky, PhD, All of Us Research Program
Topic: Workshop Priorities (VIDEOCAST)
Time: 9:10–9:30 a.m.
Presenter/Facilitator: Subhashini Chandrasekharan, PhD, All of Us Research Program
Topic: Keynote Presentation (VIDEOCAST)
Time: 9:30–9:45 a.m.
Presenter/Facilitator: Stephanie Devaney, PhD, All of Us Research Program
Topic: Scientific Priorities for the All of Us Research Program (VIDEOCAST)
Time: 9:45–10:30 a.m.
Presenter/Facilitator: Kelly Gebo, MD, MPH, All of Us Research Program
Topic: Engagement and Retention Priorities for the All of Us Research Program (VIDEOCAST)
Time: 9:45–10:30 a.m.
Presenter/Facilitator: Consuelo H. Wilkins, MD, MSCI, Vanderbilt University
Break
Time: 10:30–10:40 a.m.
Topic: All of Us Research Resources (VIDEOCAST)
Time: 10:40–11:15 a.m.
Presenter/Facilitator: Weiyi Xia, PhD, Vanderbilt University, Dikshya Bastakoty, PhD, Vanderbilt University
Topic: All of Us Policy Implementation (VIDEOCAST)
Time: 11:15–11:45 a.m.
Presenter/Facilitator: John Wilbanks, BA, Sage Bionetworks, Ericka Thomas, MS, All of Us Research Program
Lunch
Time: 11:45 a.m.–12:45 p.m.
Topic: Demo of All of Us Research Hub and Discussion (VIDEOCAST)
Time: 12:45–2:15 p.m.
Presenter/Facilitator: Kelsey Mayo, PhD, Vanderbilt University
Topic: Breakout Session 1: Ideation (CLOSED SESSION)
Time: 2:15–5:00 p.m.
Session Goal: Workshop participants will share, discuss, and record ideas for how they could use the All of Us resource for ELSI research
- Legal/Regulatory Policy
- Genomics
- Social Determinants of Health
Adjourn
Time: 5:00 p.m.
Day 2–Tuesday, June 25, 2019
Topic: Welcome (VIDEO CAST)
Time: 8:30–8:35 a.m.
Presenter/Facilitator: Katherine Blizinsky, PhD, All of Us Research Program
Topic: Recap of Day One and Set the Stage for Day Two (VIDEOCAST)
Time: 8:35–9:00 a.m.
Presenter/Facilitator: Megan Doerr, MS, Sage Bionetworks
Topic: Breakout Session 2: Just Do It (Test Case Studies) (CLOSED SESSION)
Time: 9:00–12:00 p.m.*
Session Goal: Develop case studies to share with all workshop participants
- Legal/Regulatory Policy
- Genomics
- Social Determinants of Health
Lunch
Time: 12:00–1:00 p.m.
Topic: Plenary Session: Presentations by Breakout Groups (VIDEOCAST)
Time: 1:00–2:00 p.m.
- Legal/Regulatory Policy
- Genomics
- Social Determinants of Health
Topic: Breakout Session 3: Development for Technical Needs (CLOSED SESSION)
Time: 2:00-3:35 p.m.
Session Goal: Brainstorm and rank ideas for future development of the technical platform/interface for ELSI researchers
- Legal/Regulatory Policy
- Genomics
- Social Determinants of Health
Topic: Closing Remarks (VIDEOCAST)
Time: 3:35–4:00 p.m.
Presenter/Facilitator: Katherine Blizinsky, PhD, All of Us Research Program
Adjourn Workshop
Time: 4:00 p.m
