All of Us Research Program to host ELSI workshop

June 10, 2019

The All of Us Research Program’s Policy Office will be hosting its Ethical, Legal, and Social Implications (ELSI) Priorities Workshop on June 24-25, 2019. All of Us is committed to advancing efforts to identify and assess the ethical, legal, and social issues in research using the All of Us data resources to benefit both the program and the broader research community. The workshop is a two-day endeavor to help All of Us refine its ELSI goals.

The agenda will include a series of speakers, including a keynote by Stephanie Devaney, PhD, the Deputy Director. Additionally, the workshop will feature talks from key All of Us staff and consortia members to provide a deeper overview of the program’s many parts.  For the rest of the workshop, attendees will break out into working groups dedicated to three topic areas: genomics, social determinants of health, and regulatory and legal policy. These working group sessions will address crucial ELSI research questions pertinent to All of Us and the information and tools needed to answer them.

Workshop attendees will include ELSI experts, consortia members, federal staff from the National Institutes of Health and Health and Human Services, citizen and community scientists, participant ambassadors, and early career ELSI researchers. Attendees will explore the All of Us data resources in detail, including the data architecture and data types, highlighting any additional data collection, data structural changes, and research tools needed to advance ELSI research. The workshop’s open sessions will be streamed via NIH Videocast and archived for on-demand viewing. We will interact with our viewers through Twitter using the hashtag #JoinAllofUs. We urge you join the conversation, leave us your questions, and provide us your feedback.

View ELSI Workshop Agenda.

View ELSI Workshop Summary pdf | 341.21 KB.

For more information, please contact [email protected]

Resources for Workshop Attendees

 

Please explore these sites to learn more about the All of Us Research Hub, data browser, data sources, and overview of participant characteristics and types of data collected from participants.

General (All participants)

Genomics Workstream

Social Determinants Workstream

Policy/Legal Workstream

Genomics Workstream

Social Determinants Workstream

Policy/Legal Workstream

General

Genomics Workstream

Social Determinants Workstream

Policy/Legal Workstream