The National Institutes of Health’s All of Us Research Program has begun to return genetic results to participants who have donated biosamples for research. This reflects the program’s priority to give back information to its research volunteers. Initially, participants can choose to receive information about their genetic ancestry and traits, with health-related results available at a later date.
Today the All of Us Research Program released an updated version of the Researcher Workbench, with expanded health data and upgraded tools to drive new biomedical discoveries. Now, for the first time, researchers have access to information about All of Us participants’ experience with the COVID-19 pandemic through answers to survey questions on mental health, social distancing, and economic impacts. The new release also includes the program’s first set of Fitbit data, with information about participants’ physical activity and more.
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Today the All of Us Research Program released the white paper “Ethical, Legal, and Social Implications (ELSI) in the All of Us Research Program: Learnings, Vision, and Approach for Addressing Current and Emergent Issues.” It details the role of ELSI in shaping the program from its inception and the program’s plans for integrating ELSI going forward.
The National Institutes of Health’s All of Us Research Program has recently welcomed more organizations into its national consortium. These new partners will build on the program’s enrollment successes, and they will support outreach to prospective participants in additional communities.
The Precision Medicine Initiative® (PMI) Cohort Program will now be called the All of Us Research Program and will be the largest health and medical research program on precision medicine. A set of core values is guiding its development and implementation: