The All of Us Consent Process

The All of Us Research Program is committed to helping potential participants make informed decisions about whether to participate. By giving potential participants information about how the program operates, reasonable expectations, and participants’ rights, the program ensures that people who decide to join do so because it’s right for them and the nature of their participation. This ensures that people make an informed decision about whether to join.

Before signing forms saying that they consent to participate, participants view a series of screens with text and short videos that explain the program’s goals, how it works, and what participation entails. See the consent forms and videos below to learn more.

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Intro to Consent (0:28)

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This video series will make sure that everyone is on the same page regarding the All of Us Research Program and explain the various stages of the program.

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Basic Information (0:22)

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This video explains the various ways All of Us will contact participants.

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Health Information (0:30)

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This video explains the surveys that participants will take and the questions that they might be asked.

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Health Records (0:51)

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This video provides information about the process for sharing health records with the All of Us Research Program.

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Physical Measurements (0:26)

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This video provides information about the various physical measurements that may be taken by a trained All of Us staff member.

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Fitness Tracker (0:09)

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This video provides information about fitness tracker data.

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Samples (0:51)

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This video provides information about the samples that some participants will be asked to provide and the analysis that may be done.

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What we will do with your data and samples (1:43)

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This video provides information about the analysis that may be done on the samples provided by participants.

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Data Sharing (0:29)

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This video provides information about the steps that the All of Us Research Program takes to ensure that all participants maintain their anonymity.

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Data Linkage (0:41)

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This video provides information about additional sources of data sharing.

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Potential Risks (0:45)

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This video provides information about the privacy and security measures taken to protect participant data.

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Research Results (1:50)

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This video provides information about research results found from studying participant data and samples.

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Seeing Your Data (0:34)

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This video provides information about the data you will be able to access.

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What are DNA Changes? (1:40)

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All human beings share more than 99% of their DNA with each other. The tiny bit that is different is part of what makes each of us unique. Please watch this short video to learn more.

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How will you check my DNA and how long will it take? (0:31)

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In addition to using your DNA for health research purposes, the All of Us Research Program can also check your DNA for results of some health-related and non-health-related changes. Please watch this short video to learn more.

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What will you check for? (0:57)

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If you say yes, you are telling us that you want to learn about your DNA results. Please watch this short video to learn more.

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What will you tell me? (2:23)

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There are different types of DNA results you may receive. Please watch this short video to learn more.

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How could finding out my DNA results help me? (0:54)

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Knowing your DNA results may help your healthcare provider take better care of you or you may learn something about yourself that you find interesting. Please watch this short video to learn more.

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What are the risks? (3:05)

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There are different kinds of risks to learning about your DNA results and sharing that information. Please watch this short video to learn more.

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