The All of Us Consent Process

The All of Us Research Program is committed to helping potential participants make informed decisions about whether to participate. By giving potential participants information about how the program operates, reasonable expectations, and participants’ rights, the program ensures that people who decide to join do so because it’s right for them and the nature of their participation. This ensures that people make an informed decision about whether to join.

Before signing forms saying that they consent to participate, participants view a series of screens with text and short videos that explain the program’s goals, how it works, and what participation entails. See the consent forms and videos below to learn more.

Intro to Consent

(Watch En Español)

This video series will make sure that everyone is on the same page regarding the All of Us Research Program and explain the various stages of the program.

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Basic Information

(Watch En Español)

This video explains the various ways All of Us will contact participants.

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Health Information

(Watch En Español)

This video explains the surveys that participants will take and the questions that they might be asked.

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Health Records

(Watch En Español)

This video provides information about the process for sharing health records with the All of Us Research Program.

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Physical Measurements

(Watch En Español)

This video provides information about the various physical measurements that may be taken by a trained All of Us staff member.

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Fitness Tracker

(Watch En Español)

This video provides information about fitness tracker data.

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Samples

(Watch En Español)

This video provides information about the samples that some participants will be asked to provide and the analysis that may be done.

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DNA Analysis

(Watch En Español)

This video provides information about how participants’ DNA may be analyzed.

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Data Sharing

(Watch En Español)

This video provides information about the steps that the All of Us Research Program takes to ensure that all participants maintain their anonymity.

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Data Linkage

(Watch En Español)

This video provides information about additional sources of data sharing.

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Risk to Privacy

(Watch En Español)

This video provides information about the privacy and security measures taken to protect participant data.

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